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Idaho Gives 2022

Posted by on Apr 28, 2022 in Our Stories, Uncategorized | 0 comments

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Idaho Gives is a statewide giving program that is usually one day of giving. This year, Idaho has the ability to give for FOUR DAYS! taking place from May 2nd to May 5th, 2022, and it’s all online! This year, people across our state come together for Idaho nonprofits. It’s a time to celebrate the awesome work of Idaho’s nonprofits and benefit from the power of many. Idaho comes together – be a part of it!

This year is a time for rebuilding so it is even more crucial that Treasure Valley Down Syndrome Association gets your support now! All of our events that would normally be used to raise funds have been affected and we are still not sure what the rest of the year will look like. We really appreciate your support!

Treasure Valley Down Syndrome Association thanks you in advance for your help and participation in Idaho Gives 2022. One of the great and easy ways to get involved is to post pictures on social media and share them with friends and family to encourage them to participate as well. Below is a list of Idaho Gives sign images with relevant sayings on them that you can either download and edit or print “as is” then create your own personal pictures to post back on social media.
Be sure to include the hashtags as well with your fun and inspirational images to support the Down syndrome community and TVDSA.

Hashtags – #IdahoGives #TVDSA #RockThe21 #morealikethandifferent #WhatIBringToMyCommunity #NothingDownAboutIt #Inclusion4All

BIG+IdahoRocks Chromosomes
BIG+IdahoRaises Awareness
BIG+IdahoIncludesMe
BIG+IdahoAdvocates4me
BIG+IdahoAdvocates
BIG+IdahoAcceptsme
BIG+IdahoAccepts
BIG+Idaho+Includes+
BIG+IdahoRocksThe21
BIG+Idaho+____+

TVDSA needs your help!
Please mark your calendar and tell your friends – We need your participation to not only support us directly but to help us participate in the contests during Idaho Gives. Each year Idaho Gives awards special bonuses and prizes for each category. Every donation qualifies us for a different contest. You can review the prize structure here to see when would be the best time for you to donate – you can even split it up over several smaller donations during the events to give us a better chance! Last year we had a diligent donor that won us a $500 prize for their well timed, minimum donation!

Tips for best impact from Idaho Gives for TVDSA

  • Share with everyone you know.
  • Be on the lookout for contests.
  • You can give small amounts several times for maximum impact.

List of contests we ask that you participate in:

  • May 2nd – First Donation – Organization that receives the first online donation at 12:00 am MT on May 2, 2022 will win. All sizes and regions are eligible.
  • May 3rd – Tuesday Two Hour Tournament – Organizations participating in Idaho Gives are eligible. Drawn randomly every two hours from a pool of online donations from the previous two hours at 9:00 am, 11:00 am, 1:00 p.m., 3:00 pm, 5:00 pm MT on May 3rd. Each organization drawn will win $500.00. All sizes and regions are eligible.
  • May 4th – Peer-to-Peer Pals – All organizations with a Peer-to-Peer fundraiser that has collected $250 online or more will be eligible. Drawn randomly from group of qualified nonprofits on May 4, 2022 at 5:00 pm MT.
  • Global Giver – The organization that receives an online donation from the location furthest away. All measurements will be taken from the donor’s mailing address to Boise, ID. Addresses must be recognizable in Google. Drawn after Idaho Gives is complete. All sizes and regions are eligible.
  • Leaderboard – Awarded to the top 10 organizations in our category based on the most unique donors at the end of Idaho Gives.

Visit our Idaho Gives site here to make your donation starting May 1st or to get info about our other activities.

More details and reminders to come via email and social media so mark your calendar now and check this page for more updates.

2022 Albertsons Boise Open

Posted by on Apr 28, 2022 in Our Stories, Uncategorized | 0 comments

TVDSA Golf Fans!
TVDSA is excited to announce the return of the 33rd Annual Albertsons Boise Open this August 18–21, at Hillcrest Country Club! Thanks to Albertsons, 100% of all ticket sales will support local Boise charities! TVDSA is participating again this year with a new, simplified format. Go to TVDSA’s Boise Open site to purchase tickets, and please encourage your friends and family to do the same. 
NEW this year, the tournament will feature three nights of exciting CONCERTS AFTER GOLF on Thursday, Friday and Saturday nights on the 18th hole at Hillcrest and concert admission is INCLUDED with each daily event ticket! 

Bands for golf are:
MIDLAND - Thursday, August 18th
BILLY IDOL - Friday, August 19th
TRAIN - Saturday, August 20th 

Go here to purchase tickets to support TVDSA

Visit the Boise Open website for more details.











2022 TVDSA Walk For Down Syndrome

Posted by on Mar 21, 2022 in Our Stories, Uncategorized | 0 comments

The TVDSA Walk for Down Syndrome is a great opportunity for those of us who love someone with Down syndrome to share our feelings with everyone we know! Yes, the walk is the biggest fundraiser of the year for TVDSA, but it’s also a vehicle for creating community awareness. 

This year we had to change up a few things to celebrate our Walk for Down Syndrome. While we are rebuilding and reimagining the Walk we have decided to change the venue and date. This year the Walk will be at Indian Creek Plaza, on Sunday, October 16th 2022. More details to come soon!

Create a team of your own or join an existing one, then celebrate with your own Walk with your team members.

As always, we will have prizes for raising money and incentives for getting creative with your team. Most importantly we hope that you will HAVE FUN! 

We hope you will all join us for the 20th Annual TVDSA Walk for Down Syndrome!

Call To Action

Posted by on Feb 10, 2022 in Uncategorized | 0 comments

UPDATE:

TIME CHANGE for House Health & Welfare Hearing at the Capitol for Bill 1270! 

Bill 1270 will now be heard at 8:30 am MST, TOMORROW (Tuesday) morning in the House Health & Welfare Committee at the Capitol in Boise (NOT 9 am). Most of us will not make it over to see in person. If you would like to watch online here is the link! You scroll to the bottom and tomorrow you will see a link next to Tuesday, March 8th that will be live and you can click on it and watch!

 House Health & Welfare Committee Stream

Call or email Mary Murray with any questions (208-520-9900 or marymurrayd@yahoo.com)

Thank you,
TVDSA and the Idaho Down Syndrome Council Board

We Need Your Help ASAP with Bill 1270 – Down Syndrome Diagnosis Information Act

As you may be aware, the Down Syndrome Diagnosis Information Act is important legislation that will ensure parents and providers get accurate information about Down syndrome. We have been working hard with our partners at IDSC to get this act to legislation and the time is here!

As most of you probably saw, Bill 1270 passed through the Senate with flying colors! It is now going to be heard in the House Health & Welfare Committee. So… we need your help again ASAP!!!

Thank you so much for taking the time to read this, contact your Representative, and help spread the message about Bill 1270.

This Tuesday, March 8th, a hearing is scheduled to hear our bill in the House Health & Welfare Committee at 9 am (Mountain Time). We need your help in contacting the Representatives on the Health & Welfare committee to let them know the importance of passing Bill 1270. Please contact the Representative on the Health & Welfare committee that lives closest to your home address, or you can email all of them! Here is a list of the Representatives on the Health & Welfare committee (13 Representatives):

Chair: Representative Fred Wood: FWood@house.idaho.gov
Vice-Chair: Representative John Vander Woude: JVanderWoude@house.idaho.gov
Representative Marc Gibbs: MGibbs@house.idaho.gov
Representative Megan Blanksma: MBlanksma@house.idaho.gov
Representative Mike Kingsley: MKingsley@house.idaho.gov
Representative Chad Christensen: CChristensen@house.idaho.gov
Representative Laurie Lickley: LLickley@house.idaho.gov
Representative Marco Erickson: MErickson@house.idaho.gov
Representative Greg Ferch: GFerch@house.idaho.gov
Representative Brandon Mitchell: BMitchell@house.idaho.gov
Representative Sue Chew: SChew@house.idaho.gov
Representative Ilana Rubel: IRubel@house.idaho.gov
Representative Ned Burns: NBurns@house.idaho.gov

Here is a map and bubbles to show you who is closest to you! https://legislature.idaho.gov/legislators/whosmylegislator/

The Legislature is in session so call their “Statehouse number” OR use their email.

If you need help figuring out which senator to contact please call or email Mary Murray (208-520-9900 or marymurrayd@yahoo.com).

Below is a phone script and an email template that you can use as you contact your Senator. You do not have to use either of these. They are just to help you if you want to use either of them.

Thank you SO much for your help. Please call, text, or email Mary Murray with any questions (208-520-9900 or marymurrayd@yahoo.com).

Thank you,
TVDSA Board and the Idaho Down Syndrome Council 

———————————————————————————————————–
Phone Call Script 
Intro 
Hello, my name is [Name]. I’m a resident of [Town, State].
I am contacting you to please ensure that Bill 1270, the Down Syndrome Diagnosis Information Act, is passed.

Talking Point 1
The ultimate goal of Bill 1270 is to ensure that parents receiving a Down syndrome diagnosis for their baby are provided timely, accurate, and complete information about Down syndrome. 

Talking Point 2
Too many Idahoans have gone through traumatic Down syndrome diagnosis experiences where incorrect or a lack of information was shared. 

Talking Point 3
Research shows that a parent’s experience of receiving a diagnosis of Down syndrome is very impactful and the memory of fear OR hope stays with the parent for a lifetime. 

Talking Point 4
Bill 1270 is legislation requiring that health care practitioners provide written information about Down syndrome, resources, and support groups to parents receiving a prenatal or postnatal diagnosis of Down syndrome for their baby. 

Talking Point 5
Bill 1270 is one way to share information with parents and health care professionals so babies with Down syndrome are not feared or disregarded but instead seen as valuable contributing citizens of Idaho.

Talking Point 6
Share a personal testimony or experience (this is not required) 

Closing 
Thank you for your time. Please support Bill 1270.
If you have more questions please contact Mary Murray at 208-520-9900.

[IF LEAVING A VOICEMAIL: please leave your full street address and zip code to ensure your call is tallied]
———————————————————————————————————————

Email Template 

[Date]

Dear [insert Senator’s name],

Hello, this is [Your Name]. I’m a resident of [Town, State].

I am writing to you to please ensure that Bill 1270, the Down Syndrome Diagnosis Information Act is passed.

The ultimate goal of Bill 1270 is to ensure that parents receiving a Down syndrome diagnosis for their baby are provided timely, accurate, and complete information about Down syndrome. 

Too many Idahoans have gone through traumatic Down syndrome diagnosis experiences where incorrect or a lack of information was shared. 

Research shows that a parent’s experience of receiving a diagnosis of Down syndrome is very impactful and the memory of fear OR hope stays with the parent for a lifetime. 

Bill 1270 is legislation requiring that health care practitioners provide written information about Down syndrome, resources, and support groups to parents receiving a prenatal or postnatal diagnosis of Down syndrome for their baby. 

Bill 1270 is one way to share information with parents and health care professionals so babies with Down syndrome are not feared or disregarded but instead seen as valuable contributing citizens of Idaho.

[Share a personal testimony or experience (this is not required)] 

Thank you for your time. Please support Bill 1270. If you have more questions please contact Mary Murray at marymurrayd@yahoo.com or 208-520-9900.

Sincerely, 
[Your Name]
[Your street address]
[Your City, ST, Zip code]

Join Us at the Capitol Building to show your support AND Thank You For Your Help With Bill 1270 

As you have seen recently with the email and Social Media posts, it is officially GO TIME on Bill 1270, the Down Syndrome Diagnosis Information Act.
Thank you to everyone that has called or sent emails to Senators. Please keep the support coming! 
We wanted to invite you all to the hearing in Boise to show the Senate how important this bill is to our community and our state! We wanted you to know you are welcome! IDSC has ordered 40 shirts with the IDSC logo on them in various sizes. We will hand them out until they are, hopefully, all gone. We are encouraging everyone to wear blue and yellow to show unity in our cause. Here are the details:

What: Senate Health and Welfare Committee Hearing on Bill 1270
When: Monday, February 14th at 3 pm MST (please arrive at 2:30 pm)
Where: The Capitol building on the Garden Level in West Wing Room 54 (WW54) 
Where to go when you arrive for the hearing: We will all meet at the Rotunda on the Garden Level of the Capitol at 2:30 pm and then around 2:45 pm walk to West Wing Room 54 (the Garden Level is the lowest level of the Capitol)
Parking: There are no specific plans or requirements to meet in a specific area.  To find available parking in the Capitol area refer to this link – Capitol Mall Parking. Normal street parking is also available in the area.
COVID Precautions: There are currently no published requirements on the Capitol visitor website, however, we encourage you to come prepared – bring a mask.

Let’s fill the hearing room on Monday, February 14th! 

Call or email Mary Murray with any questions (208-520-9900 or marymurrayd@yahoo.com)
Please email president@idahodownsyndrome.org If you plan to attend including the number of people attending.

Thank you,
TVDSA and The Idaho Down Syndrome Council Board

Stay Positive, Stay Healthy and Stay Safe

Our Stories – Charlotte Rice

Posted by on Sep 2, 2020 in Our Stories | 0 comments

charlotte web
Our daughter, Charlotte, was born early at 27 weeks. We had had an inkling that she might have Down syndrome based on preliminary clues that our doctor had seen but never got any sort of confirmation before I went into labor. When she was born, there were so many other complications that Down syndrome seemed really trivial as far as things we should be concerned about. But as she got healthier, it was something that started worrying me. What did Down syndrome mean? What things would she be able to do? How different was this going to be from what I had been expecting?

We received a welcome basket from TVDSA which gave us a lot of information about Down syndrome and I was excited that there was a network of people waiting to help us and give us guidance. What I think helped the most was that one of the NICU nurses knew another parent of a child with DS and asked me if I’d like her phone number. I was quick to say yes and talking to another parent who was already going through this journey really helped to ease my mind even further. She told me all the things her son could do and what an amazing kid he is and encouraged me to join TVDSA to meet other parents and other individuals with DS. Once Charlotte was healthy enough to go out, we started attending playdates and meeting other members.

TVDSA has provided us with a network of knowledge, support, and friends and we are so grateful for everything we have gained from being involved.

Jennifer and Mark Rice

Our Stories – Charlie and Milo McConnel

Posted by on Sep 1, 2020 in Our Stories | 0 comments

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My name is Julie McConnel and my youngest boys, Charlie and Milo, are fraternal twins both with a diagnosis of Down syndrome. We received the news of our double lottery win when I was about 18 weeks pregnant. At the time we had no idea just how lucky we were and we struggled with the uncertainty of a future raising not just one, but two children with an extra chromosome. We were afraid we might not be the best equipped to care for them and even considered finding an adoptive family for them. I’m so thankful that we chose to act in faith rather than fear and decided to parent our two boys, welcoming them into our already good-sized family of six in August of 2015. We have never regretted our decision and love the new perspectives and joys Charlie and Milo have added to our lives. We have developed a greater sense of compassion and understanding for others and learned to slow down a bit and just enjoy the ride. We will get to our destination soon enough so no need to rush.

Finding a community of support and friendship through TVDSA has been one great and unexpected blessing our boys have given us. As the coordinator for Li’l Buddies, I have had the privilege of meeting new families and then seeing those families grow into a community who cares for one another greatly. And of course, I get to watch the cutest, brightest and most precious bunch of children grow and learn. Together we celebrate milestones – first steps, first words, first day of school – share resources and advice, and lift each other up during hard times.

I wish pregnant me could have had a glimpse into the life we have now that Charlie and Milo have been in our lives for 5 years. It is not a life to be feared. It is different than I had expected and planned, but another thing our boys have taught us is that differences are beautiful and worth celebrating!

Julie A. McConnel

COVID-19 Updates

Posted by on Apr 24, 2020 in Our Stories | 0 comments

Hello TVDSA.

We have updated our protocols to eliminate most of the requirements previously set. You can find the full protocol here. This page will be updated as conditions change.

We are glad to see that you are still hanging in there with us. If you are reading this you are probably curious about when we may start doing activities again. Well that time is NOW!

We are excited to announce that we have resumed our Social Group activities. Group leads are resetting and looking for fun things for us all to do together.

Given the changes in the state of the pandemic, the TVDSA Board has decided to slowly resume the social group activities. Not all groups will start right away, however, we are now prepared to begin that process. We have set COVID protocols to guide the gatherings. There may still be some limitations and specific rules to follow. Our #1 priority is the safety and health of our participants and staff, so please help us by complying with all guidance provided.

If you are still not comfortable participating at this time or do not wish to follow the current protocols we have in place, we do encourage you to stay in touch with your respective groups. The respective Facebook groups are a great place to stay connected. If you are not currently following those groups, please seek them out and join – we would love to hear from you! We sincerely hope that we are all able to meet again in person soon. We send out a big hug and thanks to all our group organizers – we could not do this without them! Please take the time to thank them personally when you have a moment.

Event Registration and Waiver tools

The Event Registration/RSVP forms for each group can be found on the Programs page HERE as needed for upcoming events. Since events may require RSVP, these can be done online. Contact your group Leads and elsewhere on this site as events are scheduled for additional details. COVID waivers are not currently required.

Decision-making Guidance

TVDSA is following the State of Idaho recommended guidance regarding event planning and so as that changes, so will our plans. If you would like to review those resources yourself, we recommend the following websites:

coronavirus.idaho.gov
rebound.idaho.gov

In addition to the State and CDC guidance, we will continue to include enhanced safety measures to protect our most vulnerable members.

If you have any questions, please reach out to us via email or social media.

Thanks again for your efforts to support TVDSA!

Stay Positive, Stay Healthy, Stay Safe.

The TVDSA Board of Directors

WDSD 2020

Posted by on Mar 1, 2020 in Outreach & Awareness | 0 comments

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World-Down-Syndrome-Day-Feature

TVDSA VIRTUAL World Down Syndrome Day 2020

Saturday, March 21
2:00–4:00 pm

Join TVDSA online and Rock Your Socks Off!

Unfortunately our annual event previously scheduled at BSU has been canceled but we will still celebrate virtually online!

Join us online, socialize, watch some uplifting videos and share your comments, pictures and videos this year as we celebrate World Down Syndrome Day!. Don’t forget to wear your crazy socks all day to support our loved ones with Down syndrome!

You can find us online at:
Facebook –
http://www.facebook.com/tvdsa
Instagram – https://www.instagram.com/tvdsa_insta/
Twitter – http://www.twitter.com/tvdsa

 

Please help up spread awareness – post and share via social media with the following tags:

#TVDSA
#WDSD20
#WhatIBringToMyCommunity
#morealikethandifferent
#Rockthe21
#LOTSOFSOCKS

We will also be having a giveaway that runs all day on 3/21!

 TVDSA WDSD Crazy Sock Giveaway

A total of 6 – $25 e-gift certificates will be given away to participants from John's Crazy Socks (https://johnscrazysocks.com/) to those who participate in the contest. 
This contest will run all day on 3/21, World Down Syndrome Day!  Please read the instructions carefully to take full advantage and participate effectively. 

During the TVDSA WDSD Facebook Watch Party

  • During our virtual WDSD Facebook Watch Party, TVDSA will give away 3 – $25 gift certificates between the times of 2pm and 4pm.  
  • Participants that post on Facebook with the hashtag #TVDSARocksTheSocks DURING THE WATCH PARTY will be placed in a random drawing at 2:30pm, 3:00pm and 3:30pm. 
  • Winners to be announced during the event on Facebook.  

All Day WDSD

  • During the entire day of 3/21, World Down Syndrome Day, TVDSA will give away 3 – $25 gift certificates between the times of 12:01 am to 2pm and 4pm to 12 midnight.  
  • Participants that post on our Facebook, Instagram or Twitter sites with the hashtag  #TVDSARocksTheSocks DURING THE TIMES NOTED will be placed in a random drawing at 12 NOON, 6:00pm and 12:01am.  
  • Winners will be announced on Facebook, Instagram or Twitter once the winner is determined for each time segment.
     

General Rules

  • Drawing is done by random selection of all qualifying entries made during the designated time slots. Be sure to participate all day long!
  • Winners will be announced as soon as possible after the close of each time slot.
  • Multiple entries are allowed but all entries MUST include the hashtag  #TVDSARocksTheSocks
  • It is possible for a participant to win in multiple time slots.  All winner selections made by TVDSA are final.
  • Winners will receive an e-gift certificate code sent to a confirmed email address.

WDSD Info

Why 21 March? The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. 

History of WDSD 

WDSD was first observed in 2006 in many countries around the world and Down Syndrome Association Singapore launched and hosted the WDSD website from 2006-2010, on behalf of DSi, for global activities to be recorded. On 19 December 2011, the United Nations General Assembly declared 21 March as World Down Syndrome Day. The General Assembly decided to "designate 21 March as World Down Syndrome Day, to be observed every year beginning in 2012" and "invites all Member States, relevant organizations of the United Nations system and other international organizations, as well as civil society, including non-governmental organizations and the private sector, to observe World Down Syndrome Day in an appropriate manner, in order to raise public awareness of Down syndrome".

Information courtesy Down Syndrome International from the worlddownsyndromeday.org site

2019 Giving Tuesday

Posted by on Nov 25, 2019 in Uncategorized | 0 comments

#GT Heart

Giving Tuesday – 12/03/2019

This December 3rd is #GivingTuesday. This year we are fundraising to raise awareness and support our programs.

Mark your calendar and help us reach our $5000 goal.

Your donations could be used within TVDSA in the following ways:

  • $10 to $20 could add a book to our Library
  • $50 could supply a new parent with an informational basket
  • $100 could sponsor an individual to a local conference
  • $250 could support a program event for 10 participants
  • $500 could provide a sponsorship for a family to an out of town conference

You can also contribute to the organization at any amount.  Donate online to support TVDSA for Giving Tuesday on 12/03/2019.





 

The Peanut Butter Falcon

Posted by on Jul 29, 2019 in Uncategorized | 0 comments

220px-The_Peanut_Butter_Falcon_poster

The Peanut Butter Falcon
Attention all movie fans! This is one you can not miss.   This must-see indie film stars Zack Gottsagen, an accomplished actor who happens to have Down syndrome, multi-talented Shia LaBeouf, and award-winning Dakota Johnson. This movie was the winner of the Audience Award at the SXSW Film Festival and will be premiering in limited release on August 9th.  We have not been able to confirm this yet but it is rumored that Boise is one of the cities selected for this honor. If that does not happen then we should have it available locally during the nationwide release on August 23rd – cross your fingers!  We will keep you updated and plan to host an outing once we determine additional details.  Mark your calendars and plan a night out for some fun.  Check out the movie trailer and details at https://www.thepeanutbutterfalconmovie.com/ See you at the movies!