2021 TVDSA Walk For Down Syndrome

Posted by on Aug 6, 2021 in Our Stories, Uncategorized | 0 comments

The TVDSA Walk for Down Syndrome is a great opportunity for those of us who love someone with Down syndrome to share our feelings with everyone we know! Yes, the walk is the biggest fundraiser of the year for TVDSA, but it’s also a vehicle for creating community awareness. 

This year we have decided to celebrate our Walk for Down Syndrome virtually in order to ensure the safety and health of all our members and friends. 

Create a team of your own or join an existing one, then celebrate with your own Walk with your team members anytime between October 1st and October 8th. You choose the route and distance for your own event and be sure to share pictures and videos with us so we can experience your celebration along with you!

As always, we will have prizes for raising money and incentives for getting creative with your team. Most importantly we hope that you will HAVE FUN! 

On October 9th, the official TVDSA Walk for Down Syndrome Day, we will be sharing your photos and videos, awarding prizes and enjoying some fantastic online entertainment just for our friends!

We hope you will all join us for the 19th Annual TVDSA Walk for Down Syndrome!

Online Auction info

We had an online auction set up to go live October 1st at 5pm and will close on October 9th at 8am.

The Walk For Down Syndrome Online Auction raised about $500 this year!

We want to send out a big THANK YOU to all of our generous donors that provided the items for the auction.

Get you bids in ASAP and tell all your friends and family to join in!

Walk Media Submissions

Once you have completed your team event you can submit your pictures and/or video with the form below. There is a limit of 150 MB per upload. Each image or video will have to be uploaded individually. You can also upload a .zip file that contains several images/videos. Let us know if you have a larger files and we will try to accommodate.

Thanks again for your participation.

Many Thanks to all of our sponsors – We could not do this without you!

2021 Albertsons Boise Open

Posted by on Jun 1, 2021 in Uncategorized | 0 comments

TVDSA Golf Fans!
TVDSA is excited to announce the return of the 32nd Annual Albertsons Boise Open this August 19–22, at Hillcrest Country Club! Thanks to Albertsons, 100% of all ticket sales will support local Boise charities! TVDSA is participating again this year with a new, simplified format. Go to TVDSA’s Boise Open site to purchase tickets, and please encourage your friends and family to do the same. 
NEW this year, the tournament will feature three nights of exciting CONCERTS AFTER GOLF on Thursday, Friday and Saturday nights on the 18th hole at Hillcrest and concert admission is INCLUDED with each daily event ticket! Visit the Boise Open website for more details.

Our Stories – Charlotte Rice

Posted by on Sep 2, 2020 in Our Stories | 0 comments

charlotte web
Our daughter, Charlotte, was born early at 27 weeks. We had had an inkling that she might have Down syndrome based on preliminary clues that our doctor had seen but never got any sort of confirmation before I went into labor. When she was born, there were so many other complications that Down syndrome seemed really trivial as far as things we should be concerned about. But as she got healthier, it was something that started worrying me. What did Down syndrome mean? What things would she be able to do? How different was this going to be from what I had been expecting?

We received a welcome basket from TVDSA which gave us a lot of information about Down syndrome and I was excited that there was a network of people waiting to help us and give us guidance. What I think helped the most was that one of the NICU nurses knew another parent of a child with DS and asked me if I’d like her phone number. I was quick to say yes and talking to another parent who was already going through this journey really helped to ease my mind even further. She told me all the things her son could do and what an amazing kid he is and encouraged me to join TVDSA to meet other parents and other individuals with DS. Once Charlotte was healthy enough to go out, we started attending playdates and meeting other members.

TVDSA has provided us with a network of knowledge, support, and friends and we are so grateful for everything we have gained from being involved.

Jennifer and Mark Rice

Our Stories – Charlie and Milo McConnel

Posted by on Sep 1, 2020 in Our Stories | 0 comments


My name is Julie McConnel and my youngest boys, Charlie and Milo, are fraternal twins both with a diagnosis of Down syndrome. We received the news of our double lottery win when I was about 18 weeks pregnant. At the time we had no idea just how lucky we were and we struggled with the uncertainty of a future raising not just one, but two children with an extra chromosome. We were afraid we might not be the best equipped to care for them and even considered finding an adoptive family for them. I’m so thankful that we chose to act in faith rather than fear and decided to parent our two boys, welcoming them into our already good-sized family of six in August of 2015. We have never regretted our decision and love the new perspectives and joys Charlie and Milo have added to our lives. We have developed a greater sense of compassion and understanding for others and learned to slow down a bit and just enjoy the ride. We will get to our destination soon enough so no need to rush.

Finding a community of support and friendship through TVDSA has been one great and unexpected blessing our boys have given us. As the coordinator for Li’l Buddies, I have had the privilege of meeting new families and then seeing those families grow into a community who cares for one another greatly. And of course, I get to watch the cutest, brightest and most precious bunch of children grow and learn. Together we celebrate milestones – first steps, first words, first day of school – share resources and advice, and lift each other up during hard times.

I wish pregnant me could have had a glimpse into the life we have now that Charlie and Milo have been in our lives for 5 years. It is not a life to be feared. It is different than I had expected and planned, but another thing our boys have taught us is that differences are beautiful and worth celebrating!

Julie A. McConnel

COVID-19 Updates

Posted by on Apr 24, 2020 in Our Stories | 0 comments

Hello TVDSA.

We are glad to see that you are still hanging in there with us. If you are reading this you are probably curious about when we may start doing activities again. Well that time is NOW!

We are excited to announce that we will begin resuming our Social Group activities very soon. Group leads are resetting and looking for fun things for us all to do together.

Given the changes in the state of the pandemic, the TVDSA Board has decided to slowly resume the social group activities. Not all groups will start right away and initially all activities will be held outside, however, we are now prepared to begin that process. We have set COVID-19 protocols to guide the gatherings. There will still be some limitations and specific rules to follow. Our #1 priority is the safety and health of our participants and staff, so please help us by complying with all guidance provided.

We have updated our protocols to include water based activities and re-stating that at this time no indoor events will be hosted. Given the new unknowns related to the Delta variant we are proceeding with caution. You can find the full protocol here. This page will be updated as conditions change.

If you are still not comfortable participating at this time or do not wish to follow the current protocols we have in place, we do encourage you to stay in touch with your respective groups. The respective Facebook groups are a great place to stay connected. If you are not currently following those groups, please seek them out and join – we would love to hear from you! We sincerely hope that we are all able to meet again in person soon. We send out a big hug and thanks to all our group organizers – we could not do this without them! Please take the time to thank them personally when you have a moment.

Event Registration and Waiver tools

The Event Registration/RSVP and online waiver forms for each group can be found on the Programs page HERE as needed for upcoming events. Since all events will require RSVP, these should be done online. Contact your group Leads and elsewhere on this site as events are scheduled for additional details.

Decision-making Guidance

TVDSA is following the State of Idaho recommended guidance regarding event planning and so as that changes, so will our plans. If you would like to review those resources yourself, we recommend the following websites:

In addition to the State and CDC guidance, we will continue to include enhanced safety measures to protect our most vulnerable members.

If you have any questions, please reach out to us via email or social media.

Thanks again for your efforts to support TVDSA!

Stay Positive, Stay Healthy, Stay Safe.

The TVDSA Board of Directors

Idaho Gives 2020

Posted by on Apr 21, 2020 in Uncategorized | 0 comments


Idaho Gives is a statewide giving program that is usually one day of giving. This year, to compensate for our inability to get together in person due to the COVID-19 pandemic, Idaho has the ability to give for TWO WEEKS! taking place from April 23rd to May 7th, 2020, and it’s all online! This year for two amazing weeks, people across our state come together for Idaho nonprofits. It’s a time to celebrate the awesome work of Idaho’s nonprofits and benefit from the power of many. Idaho comes together – be a part of it!

This year, due to the COVID-19 pandemic, it is even more crucial that Treasure Valley Down Syndrome Association gets your support now! All of our events that would normally be used to raise funds have been affected and we are still not sure what the rest of the year will look like. Also, bad timing, but this year we are doing a planned refresh on our annual Buddy Walk that was normally in October so we can come back strong in 2021. That said, the intention was to make up for those lost funds with other events. Unfortunately, we have not been able to hold any of the events and the rest may be canceled as well. Please consider donating any funds that you would have given during other events and especially the Buddy Walk during the 2020 Idaho Gives campaign. We really appreciate your support!

Treasure Valley Down Syndrome Association thanks you in advance for your help and participation in Idaho Gives 2020. One of the great and easy ways to get involved is to post pictures on social media and share them with friends and family to encourage them to participate as well. Below is a list of Idaho Gives sign images with relevant sayings on them that you can either download and edit or print “as is” then create your own personal pictures to post back on social media.
Be sure to include the hashtags as well with your fun and inspirational images to support the Down syndrome community and TVDSA.

Hashtags – #IdahoGives #TVDSA #RockThe21 #morealikethandifferent #WhatIBringToMyCommunity #NothingDownAboutIt #Inclusion4All

BIG+IdahoRocks ChromosomesBIG+IdahoRaises AwarenessBIG+IdahoIncludesMeBIG+IdahoAdvocates4me

TVDSA needs your help!
Please mark your calendar and tell your friends – We need your participation to not only support us directly but to help us participate in the contests during Idaho Gives. Each year Idaho Gives awards special bonuses and prizes for each category. Every donation qualifies us for a different contest. You can review the prize structure here to see when would be the best time for you to donate – you can even split it up over several smaller donations during the events to give us a better chance! Last year we had a diligent donor that won us a $500 prize for their well timed, minimum donation!

Tips for best impact from Idaho Gives for TVDSA

  • Consider the full amount that you might give to TVDSA and break that up into smaller, specifically timed, donations to coincide with the different contests.
  • Multiple small donations ($10 minimum) each count as an entry and will have more impact than one larger donation.
  • Set reminders to donate on a specific day/time that coincides with one of the contests listed.
  • Challenge Friends/Family to donate with you during a specific day/time that coincides with one of the contests listed.
  • The number of Unique donations is also important so even minimum donations from other family members will help with the Prize pool awards.

List of contests we ask that you participate in:

  • April 29th – Mid Week Mania – Organizations that receive online/verified donations from 9:00 a.m. to 5:00 p.m. MT on April 29th will be eligible.
  • May 5th – Tuesday Two Hour Tournament – Drawn randomly every two hours from a pool of verified donations from the previous two hours at 9:00 a.m., 11:00 a.m., 1:00 p.m., 3:00 p.m., 5:00 p.m.
  • May 6th – Mid Week Mania – Organizations that receive online/verified donations from 9:00 a.m. to 5:00 p.m. MT on May 6th will be eligible.
  • May 7th – Idaho Gives Grand Finale – Drawn randomly every hour on May 7th from 10:00 a.m. to 10:00 p.m. MT
  • Leaderboard – Awarded to the top 10 organizations in our category based on the most unique donors at the end of Idaho Gives.

Visit our Idaho Gives site here to make your donation starting April 23rd or to get info about our other activities.

More details and reminders to come via email and social media so mark your calendar now and check this page for more updates.

We hope you all are well during this crisis. Stay Positive, Stay Clean, Stay Safe!

Idaho Gives – Will You? 

WDSD 2020

Posted by on Mar 1, 2020 in Outreach & Awareness | 0 comments


TVDSA VIRTUAL World Down Syndrome Day 2020

Saturday, March 21
2:00–4:00 pm

Join TVDSA online and Rock Your Socks Off!

Unfortunately our annual event previously scheduled at BSU has been canceled but we will still celebrate virtually online!

Join us online, socialize, watch some uplifting videos and share your comments, pictures and videos this year as we celebrate World Down Syndrome Day!. Don’t forget to wear your crazy socks all day to support our loved ones with Down syndrome!

You can find us online at:
Facebook –
Instagram –
Twitter –


Please help up spread awareness – post and share via social media with the following tags:


We will also be having a giveaway that runs all day on 3/21!

 TVDSA WDSD Crazy Sock Giveaway

A total of 6 – $25 e-gift certificates will be given away to participants from John's Crazy Socks ( to those who participate in the contest. 
This contest will run all day on 3/21, World Down Syndrome Day!  Please read the instructions carefully to take full advantage and participate effectively. 

During the TVDSA WDSD Facebook Watch Party

  • During our virtual WDSD Facebook Watch Party, TVDSA will give away 3 – $25 gift certificates between the times of 2pm and 4pm.  
  • Participants that post on Facebook with the hashtag #TVDSARocksTheSocks DURING THE WATCH PARTY will be placed in a random drawing at 2:30pm, 3:00pm and 3:30pm. 
  • Winners to be announced during the event on Facebook.  

All Day WDSD

  • During the entire day of 3/21, World Down Syndrome Day, TVDSA will give away 3 – $25 gift certificates between the times of 12:01 am to 2pm and 4pm to 12 midnight.  
  • Participants that post on our Facebook, Instagram or Twitter sites with the hashtag  #TVDSARocksTheSocks DURING THE TIMES NOTED will be placed in a random drawing at 12 NOON, 6:00pm and 12:01am.  
  • Winners will be announced on Facebook, Instagram or Twitter once the winner is determined for each time segment.

General Rules

  • Drawing is done by random selection of all qualifying entries made during the designated time slots. Be sure to participate all day long!
  • Winners will be announced as soon as possible after the close of each time slot.
  • Multiple entries are allowed but all entries MUST include the hashtag  #TVDSARocksTheSocks
  • It is possible for a participant to win in multiple time slots.  All winner selections made by TVDSA are final.
  • Winners will receive an e-gift certificate code sent to a confirmed email address.


Why 21 March? The date for WDSD being the 21st day of the 3rd month, was selected to signify the uniqueness of the triplication (trisomy) of the 21st chromosome which causes Down syndrome. 

History of WDSD 

WDSD was first observed in 2006 in many countries around the world and Down Syndrome Association Singapore launched and hosted the WDSD website from 2006-2010, on behalf of DSi, for global activities to be recorded. On 19 December 2011, the United Nations General Assembly declared 21 March as World Down Syndrome Day. The General Assembly decided to "designate 21 March as World Down Syndrome Day, to be observed every year beginning in 2012" and "invites all Member States, relevant organizations of the United Nations system and other international organizations, as well as civil society, including non-governmental organizations and the private sector, to observe World Down Syndrome Day in an appropriate manner, in order to raise public awareness of Down syndrome".

Information courtesy Down Syndrome International from the site

2019 Giving Tuesday

Posted by on Nov 25, 2019 in Uncategorized | 0 comments

#GT Heart

Giving Tuesday – 12/03/2019

This December 3rd is #GivingTuesday. This year we are fundraising to raise awareness and support our programs.

Mark your calendar and help us reach our $5000 goal.

Your donations could be used within TVDSA in the following ways:

  • $10 to $20 could add a book to our Library
  • $50 could supply a new parent with an informational basket
  • $100 could sponsor an individual to a local conference
  • $250 could support a program event for 10 participants
  • $500 could provide a sponsorship for a family to an out of town conference

You can also contribute to the organization at any amount.  Donate online to support TVDSA for Giving Tuesday on 12/03/2019.


The Peanut Butter Falcon

Posted by on Jul 29, 2019 in Uncategorized | 0 comments


The Peanut Butter Falcon
Attention all movie fans! This is one you can not miss.   This must-see indie film stars Zack Gottsagen, an accomplished actor who happens to have Down syndrome, multi-talented Shia LaBeouf, and award-winning Dakota Johnson. This movie was the winner of the Audience Award at the SXSW Film Festival and will be premiering in limited release on August 9th.  We have not been able to confirm this yet but it is rumored that Boise is one of the cities selected for this honor. If that does not happen then we should have it available locally during the nationwide release on August 23rd – cross your fingers!  We will keep you updated and plan to host an outing once we determine additional details.  Mark your calendars and plan a night out for some fun.  Check out the movie trailer and details at See you at the movies!

2018 TVDSA Golf Tournament

Posted by on May 18, 2018 in Uncategorized | 1 comment

TVDSA Golf Tournament – 2018

The TVDSA Trisomy 21 Open is Saturday, July 21st

Tee it up logo - transparent

TVDSA will be hosting the 2018 TVDSA Golf Tournament at Eagle Hills Golf Course.  This is a fundraiser for TVDSA with the proceeds going to fund existing and future programs provided by TVDSA.  This will be a great time and for a great cause. Your participation is fundamental to our success!  Players need to be at least 14 years of age and all abilities welcome.

Players that have Down syndrome and are TVDSA members get FREE registration.

Even if you do not want to play, there will be numerous sponsorship opportunities. Many prizes will be available.


What: 2018 TVDSA Trisomy 21 Open

Where: Eagle Hills Golf Course – 605 N Edgewood Ln, Eagle, ID 83616

When: Saturday, July 21st 2018 – 9 AM Shotgun start – Check-in opens at 7 AM and range opens at 7:45 AM

Why: Fundraiser for TVDSA and to have lots of FUN!

Who: Anyone who likes to play golf

Cost: $85 per Player before June 27th for early registration. Late registration will be $100 per player – Includes Golf, Carts, Lunch and more. Register before June 27th to get the early price!


The tournament will be a scramble/Best Ball format. Go to the registration site for details on tournament fun and what you get for playing.  This is designed for fun and ease – if you can hold a club you can play.

Online registration is OPEN – Register or sponsor now.


If you would like to volunteer for this event you can sign up on our eventbrite site – 2018 TVDSA Trisomy 21 Open – Volunteer Registration

Come on out for some FUN and we hope to see you there!


Many Thanks to our Sponsors – We could not do it without you!!